Legal information and privacy policy

H4 Orphan Pharma is concerned about the rights of individuals, particularly with regard to automated processing, and in the interests of transparency with its customers, has put in place a policy setting out all such processing, the purposes for which it is carried out and the means of action available to individuals to enable them to exercise their rights as fully as possible. For further information on the protection of personal data, please consult the following website: https:/
Continued browsing of this site implies unreserved acceptance of the following provisions and conditions of use.
The version of these conditions of use currently online is the only version that can be invoked throughout the period of use of the site and until a new version replaces it.

Article 1 – Legal information

1.1 Website :

1.2 Éditeur :

H4 ORPHAN PHARMA with a capital of € 1,152,131.00, having its registered office at: 10, avenue du Maréchal Foch, 21000 DIJON, France represented by Gaëtan TERRASSE in its capacity as Chairman, registered in RCS of Dijon, SIREN number 821 279 734. Phone number +33 7 82 41 87 10, email address :

1.3 Host :

The site is hosted by OVH, whose head office is located at 2 rue Kellermann – 59100 Roubaix – France.

1.4 Data Protection Officer (DPO)

A data protection officer: Gaëtan TERRASSE,, will be happy to answer any questions you may have about the protection of your personal data.

Article 2 – Access to the website

Access to and use of the site are strictly for personal use. You undertake not to use this site or the information or data it contains for commercial, political or advertising purposes or for any form of commercial solicitation, in particular the sending of unsolicited e-mails.

Article 3 – Website content

All trademarks, photographs, texts, comments, illustrations, images (animated or not), video sequences, sounds, as well as all computer applications that may be used to operate this site and, more generally, all elements reproduced or used on the site are protected by current intellectual property laws. They are the full and entire property of the publisher or its partners. Any reproduction, representation, use or adaptation, in any form whatsoever, of all or part of these elements, including computer applications, without the prior written consent of the publisher, is strictly prohibited. The fact that the publisher does not initiate proceedings as soon as it becomes aware of such unauthorised use does not constitute acceptance of the said use and waiver of prosecution.

Article 4 – Website management

For the proper management of the site, the publisher may at any time:

  • suspend, interrupt or limit access to all or part of the site, or restrict access to the site, or to certain parts of the site, to a specific category of Internet users;
  • delete any information that could disrupt the operation of the site or that contravenes national or international laws;
  • suspend the site in order to update it.

Article 5 – Responsabilities

The publisher may not be held liable in the event of any failure, breakdown, difficulty or interruption in operation preventing access to the site or any of its functions.
You are entirely responsible for the equipment you use to connect to the site. You must take all appropriate measures to protect your equipment and your own data, in particular from viral attacks via the Internet. You are also solely responsible for the sites and data that you consult.
The publisher cannot be held responsible in the event of legal action being taken against you:

  • as a result of using the site or any service accessible via the Internet;
  • as a result of your failure to comply with these terms and conditions.

The publisher is not liable for any damage caused to you, to third parties and/or to your equipment as a result of your connection to or use of the site, and you waive any action against it in this respect.
If the publisher becomes the subject of amicable or legal proceedings as a result of your use of the site, it may take action against you to obtain compensation for all damages, sums, fines and costs that may arise from these proceedings.

Article 6 – Hypertext links

The publisher authorises users to set up hypertext links to all or part of the site. Any link must be withdrawn at the publisher’s request.
Any information accessible via a link to other sites is not published by the publisher. The publisher has no rights whatsoever over the content of such links.

Article 7 – Data collection and protection

Your data is collected by the publisher.
Personal data means any information relating to an identified or identifiable natural person (data subject); an identifiable person is one who can be identified, directly or indirectly, in particular by reference to a name, an identification number or one or more factors specific to his or her physical, physiological, genetic, mental, economic, cultural or social identity.
The personal information that may be collected on the site is mainly used by the publisher to manage relations with you and, where applicable, to process your orders.
The personal data collected is as follows:

  • Surname and first name
  • Company
  • Position
  • Email address
  • Phone number

Article 8 – Right of access, rectification and removal of your data

Pursuant to the regulations applicable to personal data, users have the following rights:

  • the right of access: users may exercise their right of access to their personal data by writing to the e-mail address given below. In this case, before exercising this right, the Platform may request proof of the user’s identity in order to verify its accuracy;
  • the right of rectification: if the personal data held by the Platform are inaccurate, they may request that the information be updated;
  • the right to deletion of data: users may request the deletion of their personal data, in accordance with applicable data protection laws;
  • the right to restrict processing: users can ask the Platform to restrict the processing of personal data in accordance with the assumptions set out in the RGPD;
  • the right to object to the processing of data: users may object to their data being processed in accordance with the assumptions set out in the RGPD ;
  • the right to portability: they may request that the Platform return the personal data they have provided so that it can be transferred to a new Platform.

You can exercise this right by contacting us at the following address: H4 Orphan Pharma – 10 avenue du Maréchal Foch – 21000 Dijon –  France.
All requests must be accompanied by a photocopy of a valid, signed identity document and state the address at which the publisher may contact the applicant. A reply will be sent within one month of receipt of the request. This one-month period may be extended by two months if the complexity of the request and/or the number of requests so require.
In addition, since Law no. 2016-1321 of 7 October 2016, individuals who so wish, have the option of organising the fate of their data after their death. For more information on the subject, you can consult the CNIL website:

Article 9 – Use of data

The personal data collected from users is used to provide and improve the Platform’s services and to maintain a secure environment. The legal basis for the processing is the performance of the contract between the user and the Platform. More specifically, the data is used for the following purposes:

  • Access to and use of the Platform by the user;
  • Management of the operation and optimisation of the Platform;
  • Implementation of user support ;
  • Verification, identification and authentication of data transmitted by the user ;
  • Personalise services by displaying advertisements based on the user’s browsing history and preferences;
  • Fraud prevention and detection, malicious software and security incident management;
  • Management of any disputes with users;
  • Sending commercial and advertising information based on the user’s preferences.

Article 10 – Data storage policy

The Platform retains your data for as long as is necessary to provide its services or support to you.
To the extent reasonably necessary or required to satisfy legal or regulatory obligations, settle disputes, prevent fraud and abuse or enforce our terms and conditions, we may also retain some of your information as necessary, even after you have closed your account or we no longer need it to provide our services to you.

Article 11 – Sharing personal data with third parties

Personal data may be shared with third-party companies exclusively within the European Union, in the following cases:

  • when the user publishes information accessible to the public in the free comment areas of the Platform;
  • when the user authorises a third party’s website to access his/her data;
  • when the Platform uses the services of service providers to provide user support, advertising and payment services. These service providers have limited access to the user’s data in order to provide these services and are contractually obliged to use it in accordance with the provisions of the applicable regulations on the protection of personal data;
  • if required by law, the Platform may transmit data in order to pursue claims against the Platform and to comply with administrative and legal proceedings.

Article 12 – Data collection

If, when consulting the site, you access personal data, you must refrain from any collection, any unauthorised use and any act that may constitute an attack on the privacy or reputation of individuals. The publisher declines all responsibility in this respect.
Data is kept and used for a period of time in accordance with current legislation.

Article 13 – Cookies

What is a cookie?
A cookie or tracer is an electronic file deposited on a terminal (computer, tablet, smartphone, etc.) and read, for example, when consulting a website, reading an email, installing or using software or a mobile application, regardless of the type of terminal used (source:
When browsing this site, “cookies” issued by the company responsible for the site concerned and/or third-party companies may be deposited on your terminal.
The first time you browse this site, a banner explaining the use of cookies will appear. From then on, by continuing to browse, the customer and/or prospect will be deemed to have been informed and to have accepted the use of said cookies. The consent given will be valid for a period of thirteen (13) months. The user has the option of deactivating cookies via their browser settings.
All the information collected will be used solely to monitor the volume, type and configuration of traffic using this site, to develop the design and layout of the site and for other administrative and planning purposes and, more generally, to improve the service we offer you.

The following cookies are used on this site:

  • Google analytics: to measure the site’s audience;
  • Google tag manager: makes it easier to implement tags on pages and manage Google tags;
  • Google Adsense: Google advertising network using YouTube websites or videos as a medium for its ads;
  • Google Dynamic Remarketing: allows us to offer you dynamic advertising based on previous searches;
  • Google Adwords Conversion: adwords campaign tracking tool;
  • DoubleClick: Google advertising cookies to display banners.

Article 14 – Photographs and representation of products

The photographs of products, accompanying their description, are not contractual and do not bind the publisher.

Article 15 – Applicable law

These conditions of use of the site are governed by French laws and are subject to the jurisdiction of the courts of the publisher’s registered office, subject to any specific jurisdiction arising from a particular legal or regulatory text.

Article 16 – Contact us 

For any questions or information about the products presented on the site, or about the site itself, you can leave a message at the following address: